Support Group:

Please respect the privacy of patient groups and do not ask to join them if you do not have the disease.

http://www.cushings-help.com/madelung.htm

 

Information from NORD, National Organization of Rare Disorders
Organizations related to Madelung's Disease

  • About Madelungs
    • 7251 Brentwood Blvd, Apt. 163
    • Brentwood, CA 94513 USA
    • Phone #: 925-516-6744
    • 800 #: N/A
    • e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    • Home page: http://www.aboutmadelungs.net/
  • Genetic and Rare Diseases (GARD) Information Center
  • NIH/National Institute of Diabetes, Digestive & Kidney Diseases
    • Office of Communications & Public Liaison
    • Bldg 31, Rm 9A06
    • 31 Center Drive, MSC 2560
    • Bethesda, MD 20892-2560
    • Phone #: 301-496-3583
    • 800 #: --
    • e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    • Home page: http://www2.niddk.nih.gov/

Please contact us if you are aware of additional groups.