Finding support and being able to ask questions to people going through similar experiences is invaluable. Please consider joining multiple groups and look for some like-minded people.

There are numerous groups on Facebook, MDJunction, and Yahoo as well as several blog sites that are aimed at Lipedema / Lipoedema / Lipödem patient support. We fully support all groups in their endeavors and we encourage open information exchange.

Please respect the privacy of patient groups and do not ask to join them if you do not have the disease. Please observe the rules & guidelines of each group.

Groups

US

Fat Disorders Research Society, Inc.    www.facebook.com/FatDisorders 

Lipedema Sisters                              https://www.facebook.com/groups/285523148224306/

Lipoedema Sisters Arizona                 https://www.facebook.com/groups/AZLipeDivas/?ref=browser

Lipedema Sisters Texas                    https://www.facebook.com/groups/866670400025908/

Lipedema Stage 3 and 4                   https://www.facebook.com/groups/1412665295674268/

Lipedema Sisters Chicago                  https://www.facebook.com/groups/LipedemaSistersChicagoArea/

Paleo Diet for Lipedema Ladies          https://www.facebook.com/groups/PaleoDietforLipedemaLadies/

Lipo for Lipedema in Beverly Hills       https://www.facebook.com/groups/LipoForLipedemaInBeverlyHills/

Lipedema Education                          https://www.facebook.com/lipedemaeducation/

Liposuction for Lipedema                   https://www.facebook.com/liposuctionforlipedema/

Lipedema & Dercum Sisters              https://www.facebook.com/groups/lipedemagalsKC/
of the Heartland 

UK

Lipoedema UK       http://www.lipoedema.co.uk/ 

Our objectives are to educate doctors, health professionals and the public about Lipoedema and its symptoms, so it may be diagnosed and treated earlier.

Talk Lipoedema     http://www.talklipoedema.org/

Lipoedema Ladies  http://www.lipoedemaladies.com/ 

Australia

LASS Lipoedema Australia Support Society http://www.lass.org.au/

The Netherlands

https://www.nlnet.nl/foundation/

The Netherlands and US

Lipese http://lipese.com/ and http://blog.lipese.com/ 

Germany

Lipoedem Hilfe www.lipoedem-hilfe-ev.de 

Canada

Lipedema Canadian Support Group/Groupe de soutien Canadien pour Lipoèdeme

 

Facebook Groups

  1. Lipedema REV'N (Research,Education, Volunteer Network)
  2. Lipoedema
  3. Lipedema Fitness
  4. Lipedema Challenge

 

Facebook Pages

  1. LympheDIVAs
  2. Lipoedema Ladies 
  3. Lipedema-The Misunderstood Fat