Finding support and being able to ask questions to people going through similar experiences is invaluable. Please consider joining multiple groups and look for some like-minded people.
There are numerous groups on Facebook, MDJunction, and Yahoo as well as several blog sites that are aimed at Lipedema / Lipoedema / Lipödem patient support. We fully support all groups in their endeavors and we encourage open information exchange.
Please respect the privacy of patient groups and do not ask to join them if you do not have the disease. Please observe the rules & guidelines of each group.
Fat Disorders Research Society, Inc. www.facebook.com/FatDisorders
Lipedema Sisters https://www.facebook.com/groups/285523148224306/
Lipoedema Sisters Arizona https://www.facebook.com/groups/AZLipeDivas/?ref=browser
Lipedema Sisters Chicago https://www.facebook.com/groups/LipedemaSistersChicagoArea/
Paleo Diet for Lipedema Ladies https://www.facebook.com/groups/PaleoDietforLipedemaLadies/
Lipo for Lipedema in Beverly Hills https://www.facebook.com/groups/LipoForLipedemaInBeverlyHills/
Lipedema Education https://www.facebook.com/lipedemaeducation/
Liposuction for Lipedema https://www.facebook.com/liposuctionforlipedema/
Lipedema & Dercum Sisters https://www.facebook.com/
of the Heartland
Lipoedema UK http://www.lipoedema.co.uk/
Our objectives are to educate doctors, health professionals and the public about Lipoedema and its symptoms, so it may be diagnosed and treated earlier.
Talk Lipoedema http://www.talklipoedema.org/
Lipoedema Ladies http://www.lipoedemaladies.com/
LASS Lipoedema Australia Support Society http://www.lass.org.au/
The Netherlands and US
Lipoedem Hilfe www.lipoedem-hilfe-ev.de
- Lipedema REV'N (Research,Education, Volunteer Network)
- Lipedema Fitness
- Lipedema Challenge