Check out Groups, Research, Open Surveys, and Literature Repository for additional links as those links are not duplicated here.

The FDRS YouTube Channel

Many, many FREE informative videos

FDRS YouTube Channel   <== <== START HERE ****

 

LIPEDEMA

Wikipedia page on Lipedema

http://en.wikipedia.org/wiki/Lipedema

 

WebMD page page on Lipedema

http://women.webmd.com/guide/lipedema-symptoms-treatment-causes

 

Dr Karen Herbst's page

Labs, Imaging, Appointments
http://www.lipomadoc.org/
Lipedema
http://www.lipomadoc.org/lipedema.html
Fat Publications
http://www.lipomadoc.org/publications.html

TREAT program's Medicine and Supplements for people with Lipedema and Dercum's Disease

 

Tilly Schmidt's page

http://www.tillysmidt.nl/LIPEDEMA%20%20Englisch%20for%20Lipoedeem.htm

 

Dr. Karen Herbst Lipedema informational videos

part 1: http://www.youtube.com/watch?v=bl6Iy-wHANg
part 2: http://www.youtube.com/watch?v=kSl6GTWWj08
part 3: http://www.youtube.com/watch?v=sS7sTgWMRLg
part 4: http://www.youtube.com/watch?v=vLRssib_Tvw
part 5: http://www.youtube.com/watch?v=v9e-4q5gCLE

 

Dr. Karen Herbst PSA video
http://www.youtube.com/watch?v=8VtsQ6v7mZQ

 

Dr. Amron on Liposuction

Part 1: https://www.youtube.com/watch?v=bNRh5zQj1tI   
Part 2: https://www.youtube.com/watch?v=MrKIvbh9rEw

Dr. Amron on Excessive Skin Removal

The Doctors


Dr. Wright

Lipedema medical treatments


LIPESE group

Super informative blog
http://blog.lipese.com/
Additional info including calendar
http://www.lipese.com/

 

Catherine Seo’s LLC's page
Lipoedema Simplified LLC
http://www.lipoedema-simplified.org/

 

Site about videotaping and photographing German women with lipedema

http://swrmediathek.de/player.htm?show=58954ee0-f2fb-11e3-85f8-0026b975f2e6

 

Old FDRS website archive

http://web.archive.org/web/20120128073444/http://fatdisorders.org/

 

 

Cure Lipedema

PSA video (Beau Dunn)
http://www.youtube.com/watch?v=X5er6ApqNjg
Website
http://www.curelipedema.org/
Blog
http://curelipedema.tumblr.com/

NLN (National Lymphedema Network) resources

Lipedema and Nutrition (must be NLN member to access)

http://www.lymphnet.org
http://www.lymphnet.org/membersOnly/dl/reprint/Vol_24/Vol_24-N4_Lipedema&nutrition.pdf

http://www.lymphnet.org/membersOnly/dl/reprint/Vol.%2019/19-1~UnLip.pdf

National Lymphedema Network: "LymphLink Question Corner."

 

Genetic and Rare Diseases Information Center

http://rarediseases.info.nih.gov/gard then search on lipedema; then search on lipoedema

 

DERCUM'S

Dercum’s Resources Website

http://dercumsresources.com/category/related-conditions/lipedema/

Dr Karen Herbst page

Dercum’s Disease
http://www.lipomadoc.org/dercums-disease.html

 

Madelung’s

Dr Karen Herbst's page

http://www.lipomadoc.org/madelungs-disease.html

 

FML

Dr Karen Herbst's page
http://www.lipomadoc.org/fml.html

 

Miscellaneous

Lymphedema Therapy (New York USA) Lipedema description
http://www.lymphedema-therapy.com/Lipedema.htm/


West Virginia University HealthCare: "Lymphedema"

UCDavis Health System: "Manual Lymphatic Drainage Massage (MLD)."


University of Rochester Medical Center: "Lymphedema Therapy: Complete Decongestive Therapy."

Liposuction doctors who do WAL in general (NOTE THEY MAY NOT YET BE AWARE OF LIPEDEMA OR HOW TO TREAT LIPEDEMA PATIENTS)
http://www.mybodyjet.com/doctor_locator.php

Gaucher Care - Disability and Special Needs Remodeling Guide  Gaucher Care

 

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