Archive for Research
News and Announcements 7.25.11
Posted by: | CommentsThere is so much going on in our community that it is time for another update!
Heidi Sykora named Conference Leader for next FDRS Conference
We are pleased to announce that Ms. Heidi Sykora has been selected to lead the planning for the next FDRS Conference. She was chosen from among 3 finalists, including Cathy Cameron and Mary Rose Accetturo, all of whom have great qualifications and great ideas. It is heartwarming to see so many people stepping up to take an active role in this huge endeavor. Heidi will coordinate a large team of volunteers to help us continue to enhance the content and attendance of each conference. Heidi lives in the Milwaukee area, but was born in raised near Chicago. The exact location and date for the next conference has not been chosen, but we anticipate it will be in the suburbs of Chicago, possibly in Fall 2012. The only thing we know for sure right now is that it will not be held at the Sheraton Suites Elk Grove Village, as our attendance will exceed the space they have available. In case you are wondering, our DVD of the 2011 conference is almost ready, so we will be announcing its availability soon! Read More→
Caution on Liposuction for RAD Patients
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The 2-day 3rd Annual FDRS Conference was a huge hit with amazing speakers from all over the US, as well as from Germany. One speaker in particular has sparked a lot of discussion among RAD patients– Dr. Stefan Rapprich from Darmsdadt, Germany. Dr. Rapprich spoke about his method for treating lipedema patients with liposuction. His treatment is referred to as liposuction using tumescent local anesthesia with a vibrating micro cannula. The patient is actually awake and assists during the procedure, and his data suggest that he can remove and prevent the return of lipedema with almost no side effects, based on 15 years of practicing this procedure. Read More→
If Your Family Has Madelung’s Disease…
Posted by: | CommentsIf you have a definitive diagnosis of Madelung’s Disease, and there are 2-3 affected family members (all diagnosed), Dr. Karen Herbst, one of the foremost specialists in rare adipose disorders, would like to speak to you. Please contact her at karen.herbst@va.gov. Let her know you saw the posting on the FDRS website. Thanks!
Study Finds Liposuction Effective on Lipedema
Posted by: | CommentsThere’s an exciting new study out on Lipedema from Dr. Stefan Rapprich and his colleagues at the Department of Dermatology, Darmstadt Hospital in Germany. They report that the most effective treatment for Lipedema is Tumescent Local Anesthesia Liposuction using a vibrating microcannula. Read More→
“What is Being Done”: An Update by Karen Herbst, PhD, MD
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The word ‘anticipation’ reminds one of the commercial depicting hungry people waiting for their super thick ketchup to start flowing. The key here is that the person waiting is hungry. If you are not hungry, you still anticipate the end, but you don’t care as much. So it is with having a fat disorder and waiting on news of any new research or medication or reason to be hopeful – we are all hungry. Let’s face it; there are too few people investigating fat disorders and these are difficult disorders to figure out – most have been around for over 100 years and many people continue to have no diagnosis and others are suffering.
So what is being done? Here is an update:
1. There is no secret treatment for Dercum’s disease. Some people have benefited from one kind of treatment or another. You can find out everything about treatment possibilities by looking at my website (http://www.lipomadoc.org), calling for an appointment at UCSD (619-543-6303) at the VA (858-552-8585) or at my new location, the Center for Advanced Medicine (760-632-9042). I am at the latter location to see patients and to make available the cyclic variations in altitude cycling altitude simulator(aka CVAC) for those patients and for continued research. Read More→
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